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April 7, 2025

Building Awareness: Why Developmental Disabilities Advocacy Matters in 2025

As we celebrated National Developmental Disability Awareness Month (DDAM) in March 2025, we took stock of how far we’ve come in promoting full inclusion, equal opportunities, and other rights of people with DD.

The theme of DDAM in 2025 is aptly titled, “We’re Here All Year” – meaning that the rights and contributions of people with DD must be highlighted all year long, not just in March.

Today, ALSO shares how advocacy significantly impacts the lives of people with DD, their family members, and, of course, the communities in which they live and work.

Understanding Developmental Disabilities Advocacy

 

“I am different, not less.”

This statement was made by Dr. Temple Grandin, world-renowned animal behaviorist who also has autism. She reminds us that being different does not make anyone less deserving of human rights (and responsibilities) than anyone else.

Importance of Advocacy

Advocacy for people with DD is important because, not too long ago, having DD meant a life of living in institutions, group homes, or, at best, working for pennies in sheltered workshops.

Fierce advocacy spurred the implementation of numerous rights that those with DD enjoy in the 21st century. A seminal moment was the passing of the Americans with Disabilities Act (ADA). This federal law, modeled after the Civil Rights Act, recognized that disability rights were essentially human rights.

The Current Landscape of Advocacy in 2025

Advocacy service organizations continue to work for equal access to community living, competitive employment, and equality in health and education. In addition to strengthening the narrative of the inherent value of full inclusion of people with DD, advocacy groups are collectively sharing resources and building coalitions in 2025.

The Evolution of Disability Advocacy

Disability rights advocacy existed in the 1800s and gained momentum in the 1960s and 1970s.

Historical Advocacy

In the 1990s, the phrase ‘Nothing About Us Without Us’ became a strong rallying cry in support of:

  • Community integration
  • Self-determination
  • Empowerment
  • Inclusivity

Self-Advocacy Movement

People with DD could be considered some of the major trailblazers of self-advocacy. Self-advocacy skills have the following benefits:

  • Better communication with others regarding preferences and needs.
  • Improving self-confidence, personal empowerment, and self-esteem.
  • Collaboration with other individuals and advocacy organizations to change policy and create legislation.

Role of Disability and Advocacy Organizations

Working together can move mountains! Disability advocacy organizations play a major role in advancing the rights of people with DD. Some organizations focus on community living and health care. While others specialize in legal services, disability benefits, or mental health services.

The Impact of Effective Advocacy

Advocacy has dramatically improved the daily lives of people with developmental disabilities, their families, and surrounding communities.

1. Policy Reforms

Federal laws, such as the ADA, have created designated protection for people of all disabilities. Communities are more accessible, and there’s better access to education, housing, and employment. Without such policy reforms, many more people with disabilities would be living in institutions or other long-term care facilities.

2. Community Programs

Multiple governmental and nonprofit organizations participate in DD advocacy.

Challenges Facing the Disability Community in 2025

Recent challenges regarding Diversity, Equity, and Inclusion initiatives may interfere with funding, resources, and other protections. Because of these changes, it wouldn’t be surprising if social stigma related to disabilities ticks upward.

Those in the disability community will also be affected by decreased resources for disability benefits, social security, and Medicaid. This will undoubtedly decrease access to services and create increased legal and policy barriers to disability rights.

The Role of ALSO in Advocating Disability Rights

At ALSO, we take the theme of DDAM seriously all year long. We build awareness of full community inclusion and the supreme importance of disability rights in every aspect of society.

Services Offered

ALSO is proud to offer:

Community Engagement

ALSO engages with advocacy organizations, community members, employers, educators, and policymakers. We know the world is complicated, and we need the minds, hearts, and hard work of people of all abilities to create a better place for everyone.

Get Involved

This means that we also need you.

  • Are you an employer who needs great employees?
  • Would you like to volunteer?
  • Would you like to donate to our amazing programs?

Learn More Here

Sources

  1. National Association of Councils on Developmental Disabilities. 2025 Developmental Disabilities Awareness Month https://nacdd.org/ddam2025/ Accessed March 30, 2025.
  2. Goodreads. Temple Grandin Quotes. https://www.goodreads.com/author/quotes/1567.Temple_Grandin  Accessed March 30, 2025.
  3. ADA National Network. Overview of the Americans with Disabilities Act. https://adata.org/factsheet/ADA-overview  Accessed March 29, 2025.
  4. Ives-Rublee, M., Doherty, C. How the disability community can fight back in 2025. March 10, 2025. https://www.americanprogress.org/article/how-the-disability-community-can-fight-back-in-2025/ Accessed March 30, 2025.
  5. National Park Service. Disability History: The Disability Rights Movement https://www.nps.gov/articles/disabilityhistoryrightsmovement.htm  Accessed March 31, 2025.
  6. Penn State Center, Philadelphia. April 9, 2024. Nothing about us without us: introduction to participatory action research https://philadelphia.center.psu.edu/news/nothing-about-us-without-us-introduction-to-participatory-action-research/ Accessed March 31, 2025.
  7. Disability Rights Florida. Trailblazers of the self-advocacy movement. https://disabilityrightsflorida.org/blog/entry/Trailblazers-of-the-Self-Advocacy-Movement   Accessed March 30, 2025.
  8. National Disability Rights Network Home Page. https://www.ndrn.org/  Accessed March 31, 2025.
  9. Administration for Community Living. Home Page. https://acl.gov/ Accessed March 31, 2025.

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