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The Team at ALSO

February 16, 2022

Cutting Through the Confusion: How to Get Disability Services in Oregon

f you Google “disability services in Oregon,” you’ll retrieve a variety of websites, everything from government websites to companies offering to help you qualify for Social Security Disability. While government websites contain the information you want, they can be challenging to navigate.

Take heart. Much of the muddle is the result of progress. “From a historical perspective, the application process has definitely improved,” says Brett Turner, CEO of Advocates for Life Skills and Opportunity (ALSO). “People with disabilities and their families have choices where they didn’t in the past. Basically, there was no choice or selection of services or any of those things. It was frustrating.”

Unfortunately, the new wealth of choices has created some confusion about what services are available and how to get them—and the process isn’t made any easier by government jargon, unfamiliar acronyms, and confusing websites that are still trying to catch up to the changes.

As a disability support services provider, ALSO works with people experiencing intellectual and developmental disabilities to build a life of their choice. We believe that support should extend to guiding you through the process of applying for and receiving services. To that end, we’re happy to provide this straightforward guide to getting services for Oregonians with intellectual and developmental disabilities.

A Step-by-Step Guide to Getting Disability Services

https://www.youtube.com/watch?v=aNHNNYLJWW4

1. Getting an Application

In Oregon, services are coordinated through individual counties. To begin the application process, find your county’s Community Developmental Disability Services (CDDP) office. You can either ask the office for an application form (and for assistance filling it out) or download the form at the bottom of the Office of Developmental Disabilities Services (ODDS) Services and Eligibility page. Each county uses the same application form, though other processes may be different. Once you’ve completed the form, take it to your local CDDP office. Applications are available in English, Spanish, Russian, and Vietnamese.

2. Determining Eligibility

After reviewing your application, your CDDP office will determine whether you or your family member is eligible for services. As an example, Multnomah County reports that they coordinate services for individuals diagnosed with intellectual and developmental disabilities, and that:

  • The condition must be expected to last a lifetime.
  • The condition must impact at least two everyday living skills. Examples include self-care, communication, learning, socialization, mobility, and self-direction.
  • The onset of the intellectual disability must have occurred prior to age 18. The onset of the developmental disability must have occurred prior to age 22.

They list potentially qualifying conditions as:

  • Intellectual Disability (IQ of 75 or below)
  • Down Syndrome
  • Autism Spectrum Disorders
  • Cerebral Palsy
  • Epilepsy
  • Fetal Alcohol/Drug Effects
  • Traumatic Brain Injury

The information above is a general example. Actual eligibility is based on a number of requirements under the Oregon Administrative Rules (OAR 411-320-0020-Definitions and OAR 411-320-0080 (1)(16)), and not all people with disabilities will meet the criteria.

3. Completing an Assessment

If your CDDP office determines that you or your family member is eligible for services, you’ll be assigned a Service Coordinator, who will work with you to assess your needs. They’ll get to know you and learn what’s important to you. They’ll tell you about housing and employment options as well as any other services you or your family member may need. You’re welcome to bring along a legal representative, guardian, or family member to assist you.

The assessment period is a great chance to discuss your wants, needs, and goals. Don’t be afraid to be specific. For example, if you know that you’d like to stay in your home and receive In-Home Supports or that your family member wants to work part-time in a quiet environment, let your Service Coordinator know.

4. Choosing Case Management Services

Once you and your Service Coordinator determine your needs and goals, you’ll be asked to decide whether to use your county or a brokerage for case management. In some cases, the choice is made for you: If you or your family member needs 24-hour residential care or support, you’ll need to use your county’s CDDP Service Coordinator. If you live in your own home or your family home, you may be able to choose between your county’s Service Coordinator and a Personal Agent at a Support Services Brokerage. “This is an important detail,” says ALSO’s Turner. “And it can be confusing. You can only pick one or the other.”

Both CDDP Services Coordinators and brokerage Personal Agents offer a choice of service providers, which are private, nonprofit, and for-profit organizations that deliver day services, residential services, and family support services. What’s the difference between your two choices? Your CDDP office has a wide reach and typically offers a broader choice of service providers. A brokerage is a private organization that provides some support services (though not all) and may offer a more personalized experience.
By the time you need to make a choice, you’ll probably have a good feel for the way your CDDP Service Coordinator operates. You can find out more about Oregon’s brokerages at My Brokerage, My Choice.

5. Selecting Services

Once you have chosen your Service Coordinator or Personal Agent, you’ll be issued a waiver that will pay for the services you need, and you’ll get to choose which services you want. You can receive services in your own home, your family home, a foster home, a home provided by a service provider, or in 24-hour residential care (previously called a group home). Services include:

Employment Services: Meaningful work can add a lot to life. If you or your family member is at least 18 years old, you can receive training, job placement, and on-site support. At ALSO, we work with each individual to identify career goals and aspirations, helping people to find purposeful employment that truly makes a difference in their lives, and in others’.

Residential Care Services: Some service providers offer 24-hour care in homes typically serving 3-5 people (typically 3 or fewer at ALSO’s Residential Care homes). Housing and room and board is provided, as well as assistance with activities of daily living (like bathing, eating, and dealing with money), helping residents to live the most independent life possible.

Supported Living Services: If you or your family member would like to live in your own home, you can choose from two options:

  • Supported Living – A turn-key approach to all-in-one services, this option offers comprehensive assistance with everything from medication to transportation, all provided and paid for by the service provider
  • In Home Supports – An hourly billing platform, this option focuses on individual needs and goals, encouraging and assisting with social and community integration as well as-home services.

There are more specific supported living services than we can list here, but they include transportation; assistance with activities of daily living; home modification; and community, behavioral, and social supports. All can be tailored to individual needs and are available for both children and adults. ALSO offers all these services, plus ALSO Arts, an opportunity to create and share art in a community-based setting.

Your Service Coordinator or Personal Agent will explain all the services available to you, and you’ll be able to visit the people providing the services before making any choices.

“It can be complicated to figure out how to make the right decisions,” says Turner, “but the good thing is that after choosing a service you’re not stuck in it forever. After a day or a week or a month or even five years, you can move to something different. That’s what’s great about the new process.”

More Resources

If you have questions or would like details on eligibility or the application process, you can contact your county’s CDDP office. You can also visit the Oregon Office of Developmental Disabilities Services (ODDS) page, email them at ODDS.INFO@state.or.us or call them at 503-945-5811, 800-282-8096 (toll free), or 800-282-8096 ​(TTY).

Or you can talk to us at ALSO. We’ve been Advocates for Life Skills and Opportunity since 1993 (learn more about our mission and values) and we understand how the system works. Though this guide is straightforward, sometimes life isn’t. You may need help especially quickly (as when a living situation changes), or assistance navigating an especially cumbersome or time-consuming step. We’d be happy to steer you in the right direction.

If you are already through the process and looking for services, we’d love to give you a tour of our programs and show you how our person-centered approach can support you or your family member in a life that’s as independent—and as full—as possible. Contact us today at 503-498-6565.

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